He stated when we walked in that he had some good news and some bad news. The good news was that I had Hodgkin's Lymphoma and the bad news was that I had Hodgkin's Lymphoma. So this is good, because Lymphoma is very treatable but bad because it's still cancer.
Well I really didn't doubt I had cancer though I know Dan still had a little hope that they had gotten it all wrong. So we were just relieved to know it was definitely Hodgkin's Lymphoma and that I was considered Stage II-A which means I have cancer in multiple lymph nodes, but nothing below the diaphragm or in my organs and no external symptoms like night sweats or weight loss.
So that was all a review from last time. We got to see more PET scan pictures which looked horribly scary at first, and then he explained that the radioactive sugar stuff they injected me with got pumped through my heart as well as in my bladder, so just ignore those big black holes of scariness. The cancer is covering my upper body however. I meant to ask for a picture of the PET scan but I forgot, so here is an (my) artist's rendition:
I drew you a picture Julia, but it won't let me post it. So, here is the link:
ReplyDeleteJulia, the Destroyer
That is AWESOME Tyler, thank you!
ReplyDeleteHi Julia,
ReplyDeleteI sing with your mom in Castlewood. I'm so sorry to hear about your recent diagnosis and you will certainly be in my prayers. A college classmate of mine named Jake was also diagnosed with Hodgkin's Lymphoma (stage IIB) this past Feb. He has always been an avid blogger, and obviously this turn in his life has become a major subject for him now. I know the internet generally makes it pretty easy to find resources for just about anything, but I thought I would pass on the link to his blog in case you were interested in checking it out. I know he would be happy to talk with you about any questions, fears, or concerns you might have as you move forward in your treatment if you wanted. He is also documenting every part of the process to be able to share with others like yourself who are diagnosed with it. Here is the address to his page with everything related to it.
http://www.jakebouma.com/hodgkin-lymphoma/
You will be in my prayers!
~Becky
Julia — So sorry to hear this. Please feel free to contact me at jakebouma[at]gmail[dot]com at any time if you have questions, concerns, fears, or what have you. Also, I noticed that you said you have "4 cycles of chemo which is 8 weeks long"... I was really confused by the whole "cycle" thing at first, but a cycle of ABVD is TWO treatments, and since they each are 2 weeks long, one cycle is four weeks. I just finished my 4th cycle, and it's been 4 months (4 cycles = 8 treatments = 16 weeks). I wish you peace.
ReplyDeleteThank you for the info Jake. We had gotten confused about the "cycles" and it is nice to know what we are in for now. 4 months seems like a long time, but it is nice to know that you have gone through this journey as well. I am looking forward to reading your blog.
ReplyDeleteThanks again!
Julia, I have been praying for you and will continue to do so as you make this difficult journey through both cancer and fertility treatments. If you need to talk about anything fertility related, I am your girl...please don't hesitate to ask me, I would be honored to try and help you navigate through this difficult time! Hang in there, God does amazing things and in time this will all seem like a distant memory. Love ya, stay strong and keep smiling your beautiful smile! Christie Huls
ReplyDeleteThank you so much Christie!
ReplyDeleteWill keep tract of you through this blog!! bevie
ReplyDelete